“Ross was diagnosed with Hypoplastic Left Heart Syndrome at a 25 week scan. This
was the beginning of a completely life-changing experience and not just for myself
but, my other children too....
No-one outside of these experiences could ever envisage the range of emotions and
things that need to be done after similar experiences, the diagnosis, fear, isolation
and possible bereavement that could then follow as surgeries no matter how small,
possess a risk.
Nothing prepared me for the sight I saw after surgery; my precious little boy on
a life support machine attached to many monitors, tubes and needles to monitor and
aid his recovery, nor for his loss of life at the age of 3 lovely years together
on this earth.
I am sure we all have similar fears of any surgery no matter if it’s a simple procedure
like tonsils being removed or major surgery”.
This sub fund of Understanding Differences has been proudly set up in Memory of our
Precious Little boy ‘Ross’ to help other families who have experienced the uncertainty
of such a diagnosis...
At April 2009, we are proud to announce that we hold an approximate value of
All achieved by fundraising in the community with events such as raffles, grids,
craft sessions and other donations.
We have raised this money to publish our first series of the Young Experiences, Young
Explorers Collection We have drafted a series of 5 stories about Children with Heart
Conditions entirely written from a child’s perspective, for children, from the child
with the condition and their siblings.