Introduction to understanding differences

Despite our own families very specific journey, UD is not a Congenital Heart Disease Support Group or Charity although as you continue to read on, you will learn that there is an area specifically about CHD where some other areas are grouped together, we hope it is self explanatory as to why this is the case and that there is no discrimination intended.

Every journey is relative to itself no matter how big or small it may seem to others, and every family deserves to be treated according to how they each manage and cope with their range of emotions and choices that may need to be made.

It is my dream to use my own personal story in any way I can, to empower others to be a part of A Self Help group to raise awareness to support children who have experienced difficult times... and encourage others to join our mission

In September 2005 our lives were shattered when we lost our Precious Little Boy, Little Ross, three months after his third Birthday and after his third Open Heart Surgery, he was born with Congenital Heart Disease (CHD)

Living the worst case scenario of a diagnosis of CHD led me to start on this mission, but so did having other children to consider, and a knowledge of many other things...ANY Diagnosis, Fear, Isolation is just as important as another.

Awareness of CHD is a large part of “UD” for obvious reasons but, definitely not the only topic we want to raise awareness of.

Introduction by Donna Nevill