~awareness, information and support about any diagnosis, loss and bereavement~
Despite our own families very specific journey, UD is not a Congenital Heart Disease
Support Group or Charity although as you continue to read on, you will learn that
there is an area specifically about CHD where some other areas are grouped together,
we hope it is self explanatory as to why this is the case and that there is no discrimination
Every journey is relative to itself no matter how big or small it may seem to others,
and every family deserves to be treated according to how they each manage and cope
with their range of emotions and choices that may need to be made.
It is my dream to use my own personal story in any way I can, to empower others to
be a part of A Self Help group to raise awareness to support children who have experienced
difficult times... and encourage others to join our mission
In September 2005 our lives were shattered when we lost our Precious Little Boy,
Little Ross, three months after his third Birthday and after his third Open Heart
Surgery, he was born with Congenital Heart Disease (CHD)
Living the worst case scenario of a diagnosis of CHD led me to start on this mission,
but so did having other children to consider, and a knowledge of many other things...ANY
Diagnosis, Fear, Isolation is just as important as another.
Awareness of CHD is a large part of “UD” for obvious reasons but, definitely not
the only topic we want to raise awareness of.